Examining the Impact of the COVID-19 Pandemic on Caregivers of Children with Complex and Chronic Conditions

Main Article Content

Molly Greer
https://orcid.org/0000-0001-6881-3874
Chelsea Pierce
https://orcid.org/0000-0002-3271-1654

Abstract

In March of 2020 the president of the United States declared a national emergency as COVID-19 transmitted  across the globe. Over 18 months later , the pandemic continues to pose challenges as residents of the world adapt to the ever-changing shuffle of precautions, regulations, and restrictions. During this unprecedented time we have globally learned to expect the unexpected; which has become the norm. Caregivers of Children with Complex and Chronic Conditions wear multiple hats when taking care of their children. They may serve as a nurse, therapist, educational advocate, chauffeur, or personal assistant. Due to the ever changing routines and mandates as a result of the pandemic, parents have become worn down leading to  mental health concerns and caregiver burnout. During the pandemic caused by COVID-19, caregivers of children with unique needs are faced with a new set of challenges


 


 

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How to Cite
Greer, M., & Pierce, C. (2021). Examining the Impact of the COVID-19 Pandemic on Caregivers of Children with Complex and Chronic Conditions. Research, Advocacy, and Practice for Complex and Chronic Conditions, 40(1). https://doi.org/10.14434/rapcc.v40i1.33294
Section
Advocacy and Policy

References

Bureau, U. C. (2020). Schooling during the COVID-19 pandemic. The United States Census Bureau. Retrieved January 29, 2021, from https://www.census.gov/library/stories/2020/08/schooling-during-the-covid-19-pandemic.html

Catalyst. (2020). The Impact of Covid-19 on Working Parents. Catalyst. https://www.catalyst.org/research/impact-covid-working-parents/

Dhiman, S., Sahu, P. K., Reed, W. R., Ganesh, G. S., Goyal, R. K., & Jain, S. (2020). Impact of COVID-19 outbreak on mental health and perceived strain among caregivers tending children with special needs. Research in Developmental Disabilities, 107, 103790. https://doi.org/10.1016/j.ridd.2020.103790.

Hake, M., Dewey, A., Engelhard, E., Strayer, M., Harper, T., Summerfelt, T., Malone-Smolla, C., & Maebry, T. (2020). The Impact of Coronavirus on Food Insecurity | Feeding America. https://www.feedingamerica.org/research/coronavirus-hunger-research

Hamel, L., Lopes, L., Munana, C., Kates, J., Michaud, J., & Brodie, M. (2020). KFF Coronavirus Poll:March 2020. Kaiser Family Foundation Polling.

Hurwitz, S., Garman-McClaine, B., & Carlock, K. (2021). Special education for students with autism during the COVID-19 pandemic:“Each day brings new challenges”. Autism, https://doi.org/10.1177/13623613211035935

Morelli, M., Cattelino, E., Baiocco, R., Trumello, C., Babore, A., Candelori, C., & Chirumbolo, A. (2020). Parents and children during the COVID-19 lockdown: The influence of parenting distress and parenting self-efficacy on children’s emotional well-being. Frontiers in Psychology, 11. https://doi.org/10.3389/fpsyg.2020.584645

Patrick, S. W., Henkhaus, L. E., Zickafoose, J. S., Lovell, K., Halvorson, A., Loch, S., Letterie, M., & Davis, M. M. (2020). Well-being of parents and children during the COVID-19 pandemic: A national survey. Pediatrics, 146(4). https://doi.org/10.1542/peds.2020-016824

Pordes, E., Gordon, J., Sanders, L. M., & Cohen, E. (2018). Models of care delivery for children with medical complexity. Pediatrics, 141(3), S212-S223.

Ren, J., Li, X., Chen, S., Chen, S., & Nie, Y. (2020). The influence of factors such as parenting stress and social support on the state anxiety in parents of special needs children during the COVID-19 epidemic. Frontiers in psychology, 11, 565393. https://doi.org/10.3389/fpsyg.2020.565393

Russell, B. S., Hutchison, M., Tambling, R., Tomkunas, A. J., & Horton, A. L. (2020). Initial challenges of caregiving during COVID-19: Caregiver burden, mental health, and the parent–child relationship. Child Psychiatry & Human Development, 51(5), 671–682. https://doi.org/10.1007/s10578-020-01037-x

Sharp, T. (2020). Promoting Digital Equity and Opportunity in the Time of COVID-19. American Institutes for Research. https://www.air.org/resource/promoting-digital-equity-and-opportunity-time-covid-19

Spinelli, M., Lionetti, F., Pastore, M., & Fasolo, M. (2020). Parents’ stress and children’s Psychological problems in families facing the COVID-19 outbreak in Italy. Frontiers in Psychology, 11. https://doi.org/10.3389/fpsyg.2020.01713

United States Department of Health and Human Services. (2020, June 1). The Importance of Schedules and Routines | ECLKC. https://eclkc.ohs.acf.hhs.gov/about-us/article/importance-schedules-routines

University, S. (2020, June 29). A snapshot of a new working-from-home economy. Stanford News. https://news.stanford.edu/2020/06/29/snapshot-new-working-home-economy/

Wong, M. (2020). Stanford research provides a snapshot of a new working-from-home economy. Standford News.

World Health Organization. (2020, March 26). Disability considerations during the COVID-19 outbreak. https://www.who.int/publications-detail-redirect/WHO-2019-nCoV-Disability-2020-1