Physical Disability School Performance Impact Model

Main Article Content

Mari Beth Coleman
Cate C. Smith
https://orcid.org/0000-0003-2611-6952
Joni L. Baldwin
https://orcid.org/0000-0002-5772-8524

Abstract

In this manuscript, we present a theoretical model of the impact factors that can affect school performance for students with physical disabilities. The model proposes that students’ performance is affected by biological or inherent characteristics, home and community factors,  and instructional factors.  These factors are further impacted by systemic educational barriers.  We provide a diagram and description of the overall model as well as an expanded diagram and description of each type of impact.  Our purpose for presenting the model is to raise awareness for educational teams regarding the complex needs of students with physical disabilities in order to inform educational planning.

Downloads

Download data is not yet available.

Article Details

How to Cite
Coleman, M. B., Smith, C. C., & Baldwin, J. L. (2023). Physical Disability School Performance Impact Model. Research, Advocacy, and Practice for Complex and Chronic Conditions, 41(2), 4–24. https://doi.org/10.14434/rapcc.v2i41.34530
Section
Advocacy and Policy

References

References

Agran, M., Jackson, L., Kurth, J. A., Ryndak, D., Burnette, K., Jameson, M., Zagona, A., Fitzpatrick, H., & Wehmeyer, M. (2019). Why aren’t students with severe disabilities being placed in general education classrooms: Examining the relations among classroom placement, learner outcomes, and other factors. Research and Practice for Persons with Severe Disabilities, 45(1), 4-13. https://doi.org/10.1177/1540796919878134

Ahmed, A., & Shaw, R. S. (2020). Unravelling of the “D-Word.” IASSI Quarterly, 39(4), 650-664.

Americans with Disabilities Act of 1990. (ADA) 42 U.S.C. 12101 et seq.

Aron, L., & Loprest, P. (2012). Disability and the education system. The Future of Children, 22(1), 97-122. https://doi.org/10.1353/foc.2012.0007

Batshaw, M, Roizen, N, & Pellegrino, L. (2019). Children with Disabilities, (8th ed.). Baltimore, MD: Brooks Publishing.

Brind’Amour, C. (2010). Special education students and the school media center. Current Studies in Librarianship, 30(1/2), 49–67.

Burmeister, R., Hannay, H. J., Copeland, K., Fletcher, J. M., Boudousquie, A., & Dennis, M. (2005). Attention problems and executive functions in children with spina bifida and hydrocephalus. Child Neuropsychology, 11(3), 265-283. https://doi.org/10.1080/092970490911324

Bushby, K., Finkel, R., Birnkrant, D. J., Case, L. E., Clemens, P. R., Cripe, L. & Constantin, C. (2010). Diagnosis and management of Duchenne muscular dystrophy, part 1: Diagnosis and pharmacological and psychosocial management. The Lancet Neurology, 9(1), 77-93.

Centers for Disease Control. (2022). Common barriers to participation experienced by people with disabilities. Retrieved from: https://www.cdc.gov/ncbddd/disabilityandhealth/disability-barriers.html

Chung, Y., & Carter, E. W. (2013). Promoting peer interactions in inclusive classrooms for students who use speech-generating devices. Research and Practice for Persons with Severe Disabilities, 38(2), 94-109. https://doi.org/10.2511/027494813807714492

Conn, K. M., Swanson, D., McQuaid, E., Douthit, K. & Fisher, S. G. (2015). The relationship between helplessness and the child’s asthma symptoms: The role of social support. Journal of Asthma, 52(2), 135-145. https://doi.org/10.3109/02770903.2014.952437

Council for Exceptional Children. (2020). Initial Special Set: Physical, Health and Multiple Disabilities. https://exceptionalchildren.org/standards/specialty-sets-specific-practice-areas

Dennis, M., & Barnes, M. (2010). The cognitive phenotype of spina bifida. Developmental Disabilities Research Reviews, 16(1), 31-39. https://doi.org/10.1002/ddrr.89

Devine, K. A., Holmbeck, G. N., Gayes, L., & Purnell, J. Q. (2012). Friendships of children and adolescents with spina bifida: Social adjustment, social performance, and social skills. Journal of Pediatric Psychology, 37(2), 220-231. https://doi.org/10.1093/jpepsy/jsr075

Dodds, R. L., Yarbrough, D. V., & Quick, N. (2018). Lessons learned: Providing peer support to culturally diverse families of children with disabilities or special health care needs. Social Work, 63(3), 261-264. https://doi.org/10.1093/sw/swy019

Fuchs, H. (2021). Attitudes of parents and children towards people with disabilities and their integration into society. Kultura-Społeczeństwo-Edukacja, 20(2), 91-109. https://doi.org/10.14746/kse.2021.20.5

Hanci, F., Türay, S., Dilek, M., & Kabakuş, N. (2020). Epilepsy and drug-resistant epilepsy in children with cerebral palsy: A retrospective observational study. Epilepsy & Behavior, 112. https://doi.org/10.1016/j.yebeh.2020.107357

Harutyunyan, M., & Sadlo, G. (2019). Inclusive education in Armenia: Experience of teachers reveals need for occupational therapy. Journal of the International Association of Special Education, 19(1), 27-36.

Heller, K. W., & Coleman, M. B. (2009). Classroom adaptations for students with physical, health, and multiple disabilities. In K. W. Heller, P. E. Forney, P. A. Alberto, S. J. Best & M. N. Schwartzman (Eds.), Understanding physical, health, and multiple disabilities (2nd ed., pp. 219-230). Upper Saddle River, New Jersey: Pearson

Heller, K. W., Gargiulo, R. M., & Coleman, M. B. (2021). Individuals with physical disabilities, health disabilities, and related low-incidence disabilities. In Gargiulo, R. M., & Bouck, E. C. Special education in contemporary society: An introduction to exceptionality (7th ed.). Sage

Heller, K. W., & Swinehart-Jones, D. (2003). Supporting the educational needs of students with orthopedic impairments. Physical Disabilities: Education and Related Services, 22(1), 3–24.

Holck, P., Sandberg, A. D., & Nettelbladt, U. (2010). Inferential ability in children with cerebral palsy, spina bifida and pragmatic language impairment. Research in Developmental Disabilities, 31(1), 140–150. https://doi.org/10.1016/j.ridd.2009.08.008

Houston, J., Lorenz, K. A., & van der Mars, H. (2018). Physical activity patterns in students with physical disabilities in general physical education and inclusive recess settings. Palaestra, 32(3), 51-57.

Individuals with Disabilities Education Act Regulations, 34 C.F.R. § 300.1 et seq.

Irwin, M. K., Elam, M. E., & Merianos, A. L. (2015). Coordination of care between health and education systems for patients with a hematologic or oncologic diagnosis: A time study analysis. Journal of Pediatric Nursing, 30, 244-253. https://doi.org/10.1016/j.pedn.2014.07.003

Karakas, C., Fidan, E., Arya, K., Webber, T., & Cracco, J. B. (2022). Frequency, predictors, and outcome of seizures in patients with myelomeningocele: Single-center retrospective cohort study. Journal of Child Neurology, 37(1), 80–88. https://doi.org/10.1177/08830738211053132

Kohleis K., Storck, M., Geissler-Preuss, S., Hirsch, A., Kuhn, F. D., Ortfeld, S., Rapp, M., & Bode, H. (2019). Risk factors for mental health problems in children with cerebral palsy and spina bifida. Klinische Padiatrie, 231(1), 28-34. https://doi.org/10.1055/a-0664-0832

Koller, D., & Stoddart, K. (2021). Approaches that address social inclusion for children with disabilities: A critical review. Child & Youth Care Forum, 50, 679-699. https://doi.org/10.1007/s10566-020-09589-8

Kurth, J. A., & Mastergeorge, A. M. (2010). Individual education plan goals and services for adolescents with autism: Impact of grade and educational setting. The Journal of Special Education, 44, 146-160. https://doi.org/10.1177/0022466908329825

Kurz, A., Elliott, S. N., Lemons, C. J., Zigmond, N., Kloo, A., & Kettler, R. J. (2014). Assessing opportunity-to-learn for students with disabilities in general and special education classes. Assessment for Effective Intervention, 40(1), 24-39. https://doi.org/10.1177/1534508414522685

Light, J., & McNaughton, D. (2014). Communicative competence for individuals who require augmentative and alternative communication: A new definition for a new era of communication? Augmentative and Alternative Communication, 30(1), 1-18. https://doi.org/10.3109/07434618.2014.885080

Lund, E. M. & Seekins, T. (2014). Early exposure to people with physical and sensory disabilities and later attitude toward social interactions and inclusion. Physical Disabilities: Education and Related Services, 33(1), 1-16. https://doi.org/10.14434/pders.v33i1.4825

Mammarella, N., Cornoldi, C., & Donadello, E. (2003). Visual but not spatial working memory deficit in children with spina bifida. Brain and Cognition, 53(2), 311–314. https://doi.org/10.1016/s0278-2626(03)00132-5

Marpole, R., Blackmore, A. M., Gibson, N., Cooper, M. S., Langdon, K., & Wilson, A. C. (2020). Evaluation and management of respiratory illness in children with cerebral palsy. Frontiers in Pediatrics, 8, 1-13. https://doi.org/10.3389/fped.2020.00333

Mawene, D., & Bal, A. (2018). Factors influencing parents’ selection of schools for children with disabilities: A systematic review of the literature. International Journal of Special Education, 33(2), 313-329.

McPhee, P. G., Brunton, L. K., Timmons, B. W., Bentley, T., & Gorter, J. W. (2017). Fatigue and its relationship with physical activity, age, and body composition in adults with cerebral palsy. Developmental Medicine & Child Neurology, 59(4), 367–373. https://doi-org.utk.idm.oclc.org/10.1111/dmcn.13306

Mouzakitis, A., Codding, R. S., & Tryon, G. (2015). The effects of self-monitoring and performance feedback on the treatment integrity of behavior intervention plan implementation and generalization. Journal of Positive Interventions, 17(4), 223-234. https://doi.org/10.1177/1098300715573629

Murray, M. M., Handyside, L. M., Straka, L. A., & Anton-Titus, T. V. (2013). Parent empowerment: Connecting with preservice special education teachers. School Community Journal, 23(1), 145-168.

Neely, M. B. (2007). Using technology and other assistive strategies to aid students with disabilities in performing chemistry lab tasks. Journal of Chemical Education, 84(10), 1697–1701. https://doi.org/10.1021/ed084p1697

Orm, S., Haukeland, Y., Vatne, T., Silverman, W. K., & Fjermestad, K. (2021). Prosocial behavior is a relative strength in siblings of children with physical disabilities or Autism Spectrum Disorder. Journal of Developmental and Physical Disabilities, 34, 591-608. https://doi.org/10.1007/s10882-021-09816-7

Pashmdarfard, M., Richards, L. G., & Amini, M. (2021). Factors affecting participation of children with cerebral palsy in meaningful activities: Systematic review. Occupational Therapy in Health Care, 35(4), 442-479. https://doi.org/10.1080/07380577.2021.1938339

Park, H., & Chung, G. (2015). A multifaceted model of changes and adaptation among Korean mothers of children with disabilities. Journal of Child & Family Studies, 24(4), 915-929. https://doi.org/10.1007/s10826-014-9909-4

Parkes, J., McCullough, N., & Madden, A. (2010). To what extent do children with cerebral palsy participate in everyday life situations? Health & Social Care in the Community, 18(3), 304–315. https://doi.org/10.1111/j.1365-2524.2009.00908.x

Pavone, P., Gulizia, C., Le Pira, A., Greco, F., Parisi, P., Di Cara, G., Falsaperla, R., Lubrano, R., Minardi, C., Spalice, A., & Ruggieri, M. (2020). Cerebral palsy and epilepsy in children: Clinical perspectives on a common comorbidity. Children, 8(1), 16. https://doi.org/10.3390/children8010016

Philip, S. S., & Dutton, G. N. (2014). Identifying and characterising cerebral visual impairment in children: A review. Clinical & Experimental Optometry, 97(3), 196–208. https://doi.org/10.1111/cxo.12155

Reid, S. M., Meehan, E. M., Arnup, S. J., & Reddihough, D. S. (2018). Intellectual disability in cerebral palsy: A population-based retrospective study. Developmental Medicine & Child Neurology, 60(7), 687–694. https://doi.org/10.1111/dmcn.13773

Ris, M. D., Ammerman, R. T., Waller, N., Walz, N., Oppenheimer, S., Brown, T. M., Enrile, B. G. & Yeates, K. O. (2007). Taxonicity of nonverbal learning disabilities in spina bifida. Journal of the International Neuropsychological Society, 13(1), 50-58. https://doi.org/10.1017/S1355617707070087

Roddy, A. (2021). Income and conversion handicaps: Estimating the impact of child chronic illness/disability on family income and the extra cost of child chronic illness/child disability in Ireland using a standard of living approach. The European Journal of Health Economics, 23, 467-483. https://doi.org/10.1007/s10198-021-01371-4

Russell, C. L. (2004). Understanding nonverbal learning disorders in children with spina bifida. Teaching Exceptional Children, 36(4), 8-13. https://doi.org/10.1177/004005990403600401

Silverman, A. M. (2020). https://www.disabilitywisdom.com/2020/08/21/what-is-disability-spread/

Smith, T. J., & Wallace, S. (2011). Social skills of children in the U.S. with comorbid learning disabilities and ADHD. International Journal of Special Education, 26(3), 238-247. https://doi.org/10.1002/14651858.CD008223.pub3

Sobana, M., Halim, D., Aviani, J. K., Gamayani, U., & Achmad, T. H. (2021). Neurodevelopmental outcomes after ventriculoperitoneal shunt placement in children with non-infectious hydrocephalus: A meta-analysis. Child’s Nervous System, 37(4), 1055–1065. https://doi.org/10.1007/s00381-021-05051-9

Sorrenti, L., Filippello, P., Buzzai, C., Buttò, C., & Costa, S. (2018). Learned helplessness and mastery orientation: The contribution of personality traits and academic beliefs. Nordic Psychology, 70(1), 71-84. https://doi.org/10.1080/19012276.2017.1339625

Swinehart-Jones, D., & Heller, K. W. (2003). Teaching students with severe speech and physical impairments a decoding strategy using internal speech and motoric indicators. Journal of Special Education, 43(3), 131-144. https://doi.org/10.1177/0022466908314945

Tobin M., & Hill. E. W. (2012). The development of reading skills in young partially sighted readers. British Journal of Special Education, 39(2), 80-86. https://doi.org/10.1111/j.1467-8578.2012.00540.x

Trela, K., & Jimenez, B. A. (2013). From different to differentiated: Using “ecological framework” to support personally relevant access to general curriculum for students with significant intellectual disabilities. Research & Practice for Persons with Severe Disabilities, 38(2), 117–119. https://doi.org/10.2511/027494813807714537

Turner, R. J., Lloyd, D. A., & Taylor, J. (2006). Physical disability and mental health: An epidemiology of psychiatric and substance disorders. Rehabilitation Psychology, 51(3), 214–223. https://doi.org/10.1037/0090-5550.51.3.214

Voyer, A.-P., Tessier, R., & Nadeau, L. (2017). Sociometric status and the attribution of intentions in a sample of adolescents with cerebral palsy. Disability & Rehabilitation, 39(5), 477-482. https://doi.org/10.3109/09638288.2016.1147618

Wakimizu, R., Fujioka, H., Nishigaki, K., & Matsuzawa, A. (2020). Quality of life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross‐sectional study. Nursing & Health Sciences, 22(4), 977–987. https://doi.org/10.1111/nhs.12755

Weir, F. W., Hatch, J. L., McRackan, T. R., Wallace, S. A., & Meyer, T. A. (2018). Hearing loss in pediatric patients with cerebral palsy. Otology & Neurotology, 39(1), 59–64. https://doi.org/10.1097/MAO.0000000000001610

Whitney, D. G., Warschausky, S. A., & Peterson, M. D. (2019). Mental health disorders and physical risk factors in children with cerebral palsy: A cross-sectional study. Developmental Medicine and Child Neurology, 61(5), 579–585. https://doi.org/10.1111/dmcn.14083

Whitney, D. G., Peterson, M. D., & Warschausky, S. A. (2019). Mental health disorders, participation, and bullying in children with cerebral palsy. Developmental Medicine & Child Neurology, 61(8), 937-942. https://doi.org/10.1111/dmcn.14175

Wiedenbauer, G., & Jansen, P. (2006). Spatial knowledge of children with spina bifida in a virtual large-scale space. Brain and Cognition, 62(2), 120–127. https://doi.org/10.1016/j.bandc.2006.04.003

Yell, M. (2018). The Law and Special Education, 5th ed. New York, NY: Pearson