Feasibility of a Home Motor Skill Intervention for Children with CHARGE Syndrome Feasibility of a Home Motor Skill Intervention

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Lauren Lieberman
Pamela Haibach-Beach
Melanie Perreault
Ali Brian
Luize Bebriša-Fedotova

Abstract

This study examined the effect of a home-based six-week motor skill intervention for children with CHARGE syndrome. Six families with children with CHARGE syndrome participated in this study. The children were assessed on their motor skills with the Test of Gross Motor Development 3 prior to the intervention and then again on the four most practiced motor skills after the intervention. Parents were also given a parental perceptions questionnaire before and post intervention. The families were provided a Gross Motor Development Curriculum, videos, tip sheets, and equipment to support the intervention. Families maintained weekly logs of their specific training practices. Each family was interviewed, and the transcripts were analyzed for themes. The four themes that emerged were Personal goals, Improvement, Barriers, and Overcoming challenges. Results revealed that it is feasible to utilize this protocol to improve motor skills for children with CHARGE syndrome.

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Lieberman, L., Haibach-Beach, P., Perreault, M., Brian, A., & Bebriša-Fedotova, L. (2021). Feasibility of a Home Motor Skill Intervention for Children with CHARGE Syndrome: Feasibility of a Home Motor Skill Intervention. Research, Advocacy, and Practice for Complex and Chronic Conditions, 40(1), 4–25. https://doi.org/10.14434/rapcc.v40i1.31710
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