Show simple item record May, Philip en Mattson, Sarah en Foroud, Tatiana en Deximo, Christina en Jones, Kenneth L. en Jacobson, Sandra en Chambers, Tina en Bakhireva, Ludmila en Arenson, Andrew en Stewart, Craig A. en Tavares, Michel en Streissguth, Ann en Yezerets, Helen en Urbanski, Joseph en Riley, Edward en Ogle, Kimberly en Rogers, Jeffrey en Robinson, Luther en Moore, Elizabeth en 2007-04-09T14:21:22Z en 2007-04-09T14:21:22Z en 1/21/2007 en
dc.identifier.citation Lecture Notes inComputer Science; Distributed, High-Performance and Grid Computing in Computational Biology International Workshop (GCCB 2006), Eilat, Israel. en
dc.description.abstract We implemented a distributed system for management of data for an international collaboration studying Fetal Alcohol Spectrum Disorders (FASD). Subject privacy was protected, researchers without dependable Internet access were accommodated, and researchers’ data were shared globally. Data dictionaries codified the nature of the data being integrated, data compliance was assured through multiple consistency checks, and recovery systems provided a secure, robust, persistent repository. The system enabled new types of science to be done, using distributed technologies that are expedient for current needs while taking useful steps towards integrating the system in a future grid-based cyberinfrastructure. The distributed architecture, verification steps, and data dictionaries suggest general strategies for researchers involved in collaborative studies, particularly where data must be de-identified before being shared. The system met both the collaboration’s needs and the NIH Roadmap’s goal of wide access to databases that are robust and adaptable to researchers’ needs. en
dc.format.extent 279401 bytes en
dc.format.mimetype application/pdf en
dc.language.iso en_US en
dc.publisher Springer Lecture Notes in Computer Science en
dc.relation.isversionof en
dc.subject Distributed Computing en
dc.subject Repository en
dc.subject Data Dictionary en
dc.subject Fetal Alcohol Spectrum Disorders en
dc.title Implementation of a Distributed Architecture for Managing Collection and Dissemination of Data for Fetal Alcohol Spectrum Disorder en
dc.type Preprint en
dc.altmetrics.display true en

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