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Implementation of a Distributed Architecture for Managing Collection and Dissemination of Data for Fetal Alcohol Spectrum Disorder

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dc.contributor.author May, Philip
dc.contributor.author Mattson, Sarah
dc.contributor.author Foroud, Tatiana
dc.contributor.author Deximo, Christina
dc.contributor.author Jones, Kenneth L.
dc.contributor.author Jacobson, Sandra
dc.contributor.author Chambers, Tina
dc.contributor.author Bakhireva, Ludmila
dc.contributor.author Arenson, Andrew
dc.contributor.author Stewart, Craig A.
dc.contributor.author Tavares, Michel
dc.contributor.author Streissguth, Ann
dc.contributor.author Yezerets, Helen
dc.contributor.author Urbanski, Joseph
dc.contributor.author Riley, Edward
dc.contributor.author Ogle, Kimberly
dc.contributor.author Rogers, Jeffrey
dc.contributor.author Robinson, Luther
dc.contributor.author Moore, Elizabeth
dc.date.accessioned 2007-04-09T14:21:22Z
dc.date.available 2007-04-09T14:21:22Z
dc.date.issued 1/21/2007
dc.identifier.citation Lecture Notes inComputer Science; Distributed, High-Performance and Grid Computing in Computational Biology International Workshop (GCCB 2006), Eilat, Israel. en
dc.identifier.uri http://dx.doi.org/10.1007/978-3-540-69968-2_4 en
dc.identifier.uri http://hdl.handle.net/2022/1025
dc.description.abstract We implemented a distributed system for management of data for an international collaboration studying Fetal Alcohol Spectrum Disorders (FASD). Subject privacy was protected, researchers without dependable Internet access were accommodated, and researchers’ data were shared globally. Data dictionaries codified the nature of the data being integrated, data compliance was assured through multiple consistency checks, and recovery systems provided a secure, robust, persistent repository. The system enabled new types of science to be done, using distributed technologies that are expedient for current needs while taking useful steps towards integrating the system in a future grid-based cyberinfrastructure. The distributed architecture, verification steps, and data dictionaries suggest general strategies for researchers involved in collaborative studies, particularly where data must be de-identified before being shared. The system met both the collaboration’s needs and the NIH Roadmap’s goal of wide access to databases that are robust and adaptable to researchers’ needs. en
dc.format.extent 279401 bytes
dc.format.mimetype application/pdf
dc.language.iso en_US en
dc.publisher Springer Lecture Notes in Computer Science en
dc.subject Distributed Computing en
dc.subject Repository en
dc.subject Data Dictionary en
dc.subject Fetal Alcohol Spectrum Disorders en
dc.title Implementation of a Distributed Architecture for Managing Collection and Dissemination of Data for Fetal Alcohol Spectrum Disorder en
dc.type Preprint en
dc.altmetrics.display true en_US


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